Privacy at Next of Kin

The information families share with Next of Kin is among the most personal and sensitive information that exists. We treat it that way.

Our commitments

We will never sell your data. To anyone. For any reason.

We will never share your information with advertisers or data brokers.

We will never use the personal content you share to train AI models for any purpose beyond your own Next of Kin profile.

You own everything you put into Next of Kin. Your journals, your interviews, your voice recordings, your documents. They are yours.

You can delete everything at any time, permanently and irreversibly.

We will always tell you clearly what we collect, why we collect it, and what we do with it.

When you join the waitlist

We collect your name, email address, and optionally your country and your answers to our questionnaire. We use this information to let you know when Next of Kin is ready, to send you our newsletter if you've opted in, and to understand who needs this tool so we can build it well.

Your questionnaire responses — including any open-ended answers you write — are used only to improve Next of Kin. We may quote anonymised responses in our research, on our website, or in conversations with potential supporters, but we will never attach your name to a quote without asking you first.

You can unsubscribe from any communication at any time, and you can ask us to delete your waitlist data entirely by emailing us.

When you use Next of Kin

Next of Kin will hold deeply personal information about disabled children and adults — their routines, their personalities, their fears, their joys, their medical context, their relationships. This is information that a caregiver has chosen to share in order to help the people who will care for their child. We consider it sacred and will treat it accordingly.

What we store

Journal entries and voice transcripts

Stored encrypted. Only accessible to the author and anyone they explicitly grant access to.

Interview transcripts

Stored encrypted. Only accessible to the author and granted carers.

Uploaded documents, photos, and recordings

Stored encrypted in secure cloud storage. Never shared beyond granted access.

Chat conversations between carers and the AI

Stored to improve answer quality for that specific profile. Never used to train general AI models.

Access logs

We record who accessed a profile and when, so the author always knows.

What we will never do

Sell, rent, or trade personal data to third parties

Use your content to train general-purpose AI models

Show advertising of any kind within the product

Share information with government agencies unless compelled by law — and if that happens, we will tell you

Make any of your content public without your explicit, informed consent

Contact the person being cared for without the author's permission

The author of a Next of Kin profile has full control over who can access it. Access is granted via secure invite links and can be revoked at any time. When an author deletes their account, all associated data is permanently and irreversibly removed from our systems.

How AI interacts with your information

Next of Kin uses AI to make a caregiver's knowledge queryable by carers. When a carer asks a question, the AI searches the caregiver's journals, interviews, and documents to find relevant information, and generates an answer based only on what it finds.

To do this, your content is processed by our AI infrastructure. We use third-party AI services to power the question-answering system. Your data is transmitted securely and is not retained by those services beyond what is needed to generate a response.

We are transparent about this because we believe you should know exactly how your information is handled. If our AI infrastructure changes, we will tell you.

Protecting vulnerable people

Much of the information in Next of Kin relates to disabled children and adults who may not be able to consent to its collection themselves. We take this responsibility seriously.

Only a legally authorised parent, guardian, or carer may create a profile. The information shared should serve the wellbeing of the person it describes. We reserve the right to remove any content that we believe could cause harm.

Where the person being described is able to participate in the process — by contributing their own entries, reviewing their profile, or using the memory features — we encourage and support that. Their voice matters most of all.

A profile that lasts

A Next of Kin profile is built for the lifetime of the person it describes. If the caregiver or author passes away, the profile does not disappear. It continues to be available to the carers they granted access to, because that's the entire point.

We will establish clear succession protocols so that when an author is no longer able to manage the profile, a designated trusted person can take over administrative control.

If Next of Kin as a company were ever to cease operating, we commit to giving all users sufficient notice and the ability to export their complete data before any systems are shut down.

Donations

When you donate via PayPal or Venmo, your payment is processed by those platforms under their own privacy policies. We receive your name and donation amount. We do not store your payment details. Next of Kin is a for-profit social enterprise, and donations are not tax-deductible.

We will never publicly disclose donor names without permission.

Cookies and analytics

Our website uses privacy-first analytics to understand how people find and use the site. We do not use tracking cookies from advertising networks. We do not build advertising profiles. We do not sell browsing data.

We use essential cookies only — the minimum needed for the site to function.

Questions or concerns

If you have any questions about how your data is handled, want to request deletion of your information, or want to report a concern, please contact us at privacy@nextofkin.ai.

We will respond within 48 hours.

Last updated: April 2026