Next of Kin
Real conversations with caregivers of disabled children about the knowledge that matters most — and what happens when it's lost.
About the podcast
Every caregiver of a disabled child carries knowledge that no file, no form, and no assessment has ever captured. They know what the humming means. They know which words are joy and which are fear. They know what a good Tuesday looks like.
The Next of Kin podcast is a series of honest, unhurried conversations with caregivers who have spent decades learning the person behind the diagnosis — and who are now confronting the hardest question of their lives: what happens to that knowledge when they're gone?
These conversations are heartwarming, sometimes heartbreaking, and always real. They're also the raw material from which Next of Kin is being built.
Episodes
The real Ryan
Ruth has cared for her son Daniel for over three decades. She knows what his words really mean, what makes him light up, and what every new carer gets wrong. This is the conversation that started Next of Kin.
You did it (he means I did it)
Communication, misunderstanding, and the knowledge that lives only in a caregiver’s head. What happens when the person who translates for your child is no longer there?
He’d rather fix things than eat supper
Purpose, joy, and the things no medical file will ever capture. How do you pass on what you know about what makes your child come alive?
More episodes coming
Season 1 will feature conversations about communication, purpose, what the care system misses, the fear every caregiver carries, and what it means to leave behind more than love. If you're a caregiver, sibling, or carer with a story to share, we'd love to hear from you.
Share your storyUnheard Words That Matter
A biweekly newsletter about caregiving, love, and what comes next. Stories from the podcast, practical guidance, and updates on Next of Kin.
No spam. Just something worth reading every two weeks.
Help them care like you did.
Join the waitlist. We'll let you know when Next of Kin is ready.
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